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April 12, 2023April 12, 2023 warriormomslivingwithraredisease_q5spea

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  • Helpful Information about Primary Sclerosing Cholangitis
    Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile The post Helpful Information about Primary Sclerosing Cholangitis appeared first on News From Ben's Friends.
  • Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients
    Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It The post Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients appeared first on News From Ben's Friends.
  • Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families
    Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination The post Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families appeared first on News From Ben's Friends.
  • Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact 
    Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact  appeared first on News From Ben's Friends.
  • Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
    For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.

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