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Welcome to Warrior Moms Living with Rare Disease Community!

There is no cost to join.

Contributions are greatly appreciated.

Becoming an:

Awesome Donor ($3/month),

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Ben's Buddy ($10/month),

is totally voluntary and helps to sustain the operations and improvements.

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Blogs

Helpful Information about Primary Sclerosing Cholangitis
Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile The post Helpful Information about Primary Sclerosing Cholangitis appeared first on News From Ben's Friends.
Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients
Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It The post Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients appeared first on News From Ben's Friends.
Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families
Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination The post Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families appeared first on News From Ben's Friends.
Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact
Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact appeared first on News From Ben's Friends.
Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.

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